• PHO International Committee

  • Mission

    The PROMIS Health Organization (PHO) PROMIS International Committee is a collaboration of scientists and clinicians with interests in optimizing and harmonizing global use of PROMIS instruments and related resources for research, care and population monitoring. The PROMIS International Committee is part of the PHO and collaborates with the PHO Board to identify, coordinate, and promote best practices to develop, translate, validate, and utilize PROMIS instruments across countries.

    Goals

    The PROMIS International Committee aims to identify important and emerging international issues, suggest solutions, and inform/advise the PHO board. The committee performs and participates in global scientific and organizational activities.

    Activities

    Scientific activities include developing international review standards to assess cultural relevance and cross-cultural validity of PROMIS instruments; assisting with translation, cross-cultural validation, and with review to determine if country-specific items and norms are needed. Organizational activities include identifying individuals who will serve as national contact points, addressing distribution rights, collaborating with national contact points to identify local solutions to ensure privacy of data, country-specific data management tools (Assessment Center) and websites, assisting with fundraising activities, and recruitment of additional international partners.

    Structure

    National Contact Points. Within countries or regions, selected individuals will be identified as the national contact points (1-2 persons per country). National contact points hold voting privileges within the PROMIS International Committee.

    Leadership. The PROMIS International Committee is led by a small group of national contact points (i.e., the Executive Committee, currently constituted by: J. Alonso, S. Bartlett, S. Nolte/M. Rose, and C. Terwee). At any point in time at least one member of the Executive Committee is also a full voting member of the PHO board.  Invitations for nominations are sent out by the PHO Board when such position becomes available.

    General Membership. The PROMIS International Committee is generally open to all international scientists and clinicians who are involved in PROMIS-related projects. Members are encouraged to become members of the PHO.

    Communication

    All members of the PROMIS International Committee are invited to join quarterly teleconferences which provide an update on current projects and activities. At least one face-to-face meeting will be held each year adjacent to annual meetings of either the PHO or the International Society for Quality of Life Research (ISOQOL).

    The Executive Committee holds a monthly teleconference meeting.

    General information about the PROMIS International Committee, including national contact points, is available on the PROMIS website (http://www.nihpromis.org/science/PROMISInternational).

    Working papers

    1. Alonso J, Bartlett SJ, Rose M, Aaronson NK, Chaplin JE, Efficace F, et al. The case for an international patient-reported outcomes measurement information system (PROMIS(R)) initiative. Health Qual Life Outcomes 2013; 11: 210.

    2. Minimum requirements for the release of PROMIS instruments after translation and recommendations for further psychometric evaluation (final, March 2014).

    3. The DUTCH model for translation, validation, and distribution (ongoing).

    4. Work Flow for Supporting Instrument Distribution Internationally (ongoing).