Using PROMIS and PROMIS Derivative measures in Rehabilitation Populations: The SCI-QOL and TBI-QOL Measurement Systems
Hosts: David S. Tulsky, Ph.D., and Pamela A. Kisala, M.A.
Center for Health Assessment Research and Translation
University of Delaware
PROMIS has been extended and validated in individuals with spinal cord injury (SCI) and traumatic brain injury (TBI). Many PROMIS item banks have now been tested extensively and have been shown to be valid for these populations. However, for individuals who have experienced sudden, life-altering injuries associated with a wide array of long term symptoms and limitations, there are additional domains and areas of functioning that should be included in comprehensive PRO assessment. Furthermore, there is a chance for items to not function the same way as in the general population and there may be reason to omit certain items from CAT algorithms. For example, some items are not appropriate for an individual who is paralyzed due to SCI (e.g., “When I was in pain I stayed very still.”) This presentation will describe our work to test and enhance the PROMIS item banks in rehabilitation populations to effectively measure PROs in individuals who have sustained traumatic injuries.